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No matter where you live, with today's technologies it is easy to get in contact with others who suffer from essential tremor. With a quick search online, you can find 100’s of links to pages and online support groups. Some great websites to check for support groups in your area include:
www.essentialtremor.org/find-a-support-group/
https://tremoraction.org/resources/support/
thehopenet.org/blog2/support-groups/
These sites all provide comprehensive lists of essential tremor support groups that may be located in your area. If you are not interested in talking to just those with essential tremor and want to talk to lots of people with different medical conditions, you can look at these sites to find connections:
https://tremoraction.org/resources/support/
https://www.movementdisorders.org/mds/resources/helpful-links.htm
https://www.psp.org/ineedsuppport/in-person-support-groups/
If meeting in person is not something you are interested in, or there is not a group that meets in your area, you can always join an online support group and openly chat there. There are lots of online groups that you can participate in. Some of these online groups include:
https://tremoraction.org/resrouces/support
Online support groups bring people together from across the world. For many people, a health-related support group may fill a gap between medical treatment and the constant need for mental and emotional support.
Meeting with those that share your symptoms and your condition is a great way to learn more about essential tremor and treatments that have worked well for others. It is also a great way to connect with others socially, make great friends, and develop a network that truly understands what you are going through with your essential tremor trials. Participating in a support group may help you feel less lonely, reduce stress, improve coping mechanisms and skills, help you stay motivated to manage your chronic conditions, gain a sense of empowerment and hope, get practical feedback, and help you learn about all the resources that are available to you.
Family and friends are very important, but there is comfort in knowing others who share your same everyday struggles. Sharing experiences with those who have empathy for you can make your own experiences seem a little more bearable. Building the social network that can comfort you emotionally is just as vital as good medical care and treatment.
Before joining a support groups, make sure to ask questions about how they are organized and led so you are comfortable with participating and the environment. You can ask questions about how long the meetings are, where the group meets, if there is a moderator, if the moderator has training, what the guidelines of confidentiality are, what the typical meeting is like, and what the cost is or if it is free. All these questions can help you feel confident going into your first support group meeting and ensure that you will get the most out of your support group experiences.
